January 12, 2009

This adventure is really testing Jeff and my strength. We meet with the doctor all the rest of the NICU team today to go over Vann's progress, setbacks and anything else that they felt was important. Overall, we are all hoping that Vann is starting down a good road of just growing, learning to breath on his own and eating more! The good news for today was that he was taken off the ventilator and put on the CPAP (you can see it below).

We learned today that even though his head scans have been stable, we still aren't out of the woods yet. Since he is a preemie and has some brain bleeds he has a higher risk if having PVL, which can cause some variation of cerebral palsy, learning disabilities, mental/motor disabilities. They begin looking for this when he is 4 weeks old and throughout the first few years as this is something that does not show up all the way. We are keeping our fingers crossed that everything to do with his head will remain stable, but no matter what we will love him just the way he is!!!

If he continues to do well on the CPAP, we will be able to hold him more often and we will inch closer to being able to feed him ourselves....wow, I can't wait!

Weight Update:  Vann now weighs 2 lbs. 5 oz.